I decided to write about the five stages of grief. I was really hoping I could kind of check some of them off my list. Like a to do list that you've already finished part of the way. Anger, denial, file taxes, vacuum, send birthday present thank you notes, go to the dentist, bargaining, check, check, check, that kind of thing. Since I wasn't sure what all the phases were, I looked them up. They are denial, anger, bargaining, depression, and acceptance, according to Elizabeth Kubler-Ross, who wrote a book about it called
On Death and Dying.
Not everyone goes through all the phases, and the phases were actually described by Kubler-Ross as the experiences of the terminal cancer patient, or in my case, my dad's experiences, but there is some crossover for the person experiencing the death of a loved one. The five phases are kind of points of reference for me. Like when you're driving across the country and you can say you just passed through Iowa and you're making progress. One hundred miles until Acceptance - score! There are other phases that I would add such as "having lots of glass in your recycle bin" and "watching so much Grey's Anatomy and Dexter that you feel kind dirty" but Kubler-Ross didn't mention those, so maybe that's just me.
The first phase in the five phases is
denial. I'm trying to remember if I was ever in denial that my dad had cancer or that it was terminal. Probably. Actually, I think that I was most likely in denial when my dad was staying in bed all day and couldn't talk much because his health was declining and he was on painkillers. I would hear a man's voice in another room and I'd think
Dad! He's in there! And then I'd remember that dad was in a different room with a different set of circumstances and I was terrified and very sad and he was dying and that absolutely wasn't his voice. And it was easy to forget what was going on because it hadn't been that long since he was sitting in his usual chair in the living room watching
Flying Wild Alaska with my mom and sister and drinking water with lemon because lemon was supposed to help his stomach not hurt as much since the cancer was making it hurt. So, it's hard to be in denial for very long at that point. Reality hits you when there is an oxygen machine bubbling away in the bathroom, cords leading to wherever your dad is sitting. Not a lot of room for denial when methadone and morphine enter the scene.
Maybe it was easier to pretend everything was fine on a sunny day at our family reunion last August when dad was wearing a fake Hawaiian lei for our Hawaii-themed-day and hanging out down by the little lake on my aunt and uncle's property. But denial isn't really my thing. I'm more of a dad-has-cancer-so-now-let's-imagine-other-worst-case-scenarios-and-do-I-have-liver-cancer-and-is-this-mole-okay?-type of person. And that's less fun than denial, believe me.
Our family dog Maggie was a bit confused about what was going on with my dad, too, so that was maybe a little bit of denial for her. After my dad died, our good friend J. was driving my dad's truck and taking some stuff to a dumpster at the place where he and my dad worked. He needed to drop it off there since we missed our trash day due to the surprise snow storm. When he drove down the driveway, our dog perked way up and ran over to the truck, and she was excited because she thought she got to see my dad. This dog is emotive, chatty as dogs go, which I've heard is because she's got some German Sheperd in her. She loves our family friend, J., but J. said she was crestfallen to see that it was him in the truck, not my dad.
About three or so days before my dad died, our cat Leo kind of lost it. Usually he lays around the house sleeping and waiting for someone to come near enough to jump into their lap. Leo ran around the house meowing and wound up throwing up and doing other things you don't want a cat doing indoors. And since he weighs twenty three pounds, he's kind of a liability. So, he got put outside. After that he came to the big sliding glass doors in the room where my dad was in bed, and he would meow and put his paws on the door in this way that oozed of searching and frenzy and panic. Or maybe that's just me projecting on the cat. Either way, that, among many things that week, made me really sad. I think the cat could sense what was going on.
Anger is another phase in the five stages of grieving. This one took me a while to get to. I don't tend to get angry very often. Usually I reserve anger for my reflection on the Bush era or getting a parking ticket. I thought I might skip over anger, but that didn't happen. I spent a lot of December and January being more angry than usual. Which brings me to
New Year's Resolution Number 2:
Be nice to people. This resolution was modified fairly early into the new year. It is really hard to be nice when you're away from your home and you're living in a house with your immediate family (Hi sis and Mom!) taking care of your dad, who is dying. It is also hard to be nice when you get the news that dad has only six months to live. And, it's hard to be nice when you find out that six months is actually only one month plus change. I suppose I was snippy or critical or short-fused a time or two, but it has gotten easier now that I'm back at home in Seattle and the dust is beginning to settle.
Before my dad died, I did feel angry at the obvious - that my dad was going to die, that he was in pain, that he had cancer, that he was in his 50s, that some people get to be 90 and walk around with a little walker, that other people's biggest problem was getting the flu, that he wouldn't get to have golden years, that my mom would have to sign her name only on cards. But, sometimes I would get angry at other things - bad drivers, little things at work, sometimes stuff that didn't make sense. About a month ago, I flipped off a driver who honked at me for going too slow - that felt good - I tried it out again today when someone decided to merge into my lane at ramming speed because the car in front of them was stopped, but it wasn't as fun, maybe because I'm not really that angry any more. And, I don't want someone to get road rage and shoot me, so I mighr retire the bird for a while. When I was feeling really angry it felt like it was hard to separate out what's really making me angry and what's being impacted or aggravated by everything else that is going on.
Bargaining. I did some bargaining last spring. My dad had gone through chemotherapy and radiation, and we knew that the cancer wasn't active anywhere, the tumor in his esophagus shrank, and we might be able to move on to the next step, which was a gruesome surgery called an esophajectomy. In that procedure, most of the esophagus is removed, and the stomach is pulled upwards and sewn to the remaining part of the esophagus. It's like cutting a straw into a tiny piece and sewing it to a balloon. The straw is the esophagus and the balloon is the stomach. They were going to make an incision in his neck and in his abdomen and remove the bad portion of the esophagus and then sew it to the stomach - hopefully all the while not killing him in the process. My dad had the option to select a surgeon who was also a cardiologist, which he thought would have come in handy if his heart had stopped on the table. Not an easy surgery to survive or recover from in my opinion.
In the spring, we learned that even though he did chemo and radiation like a champ, the cancer moved to his liver. And, for those of you who had limited knowledge about such matters like I did at the time last year, the liver processes all the blood in the body. So, the cancer had ample chance to spread to other places since it was in the liver, and the blood going through the liver was going everywhere else in his body. I remember my dad doing a lot of research, and kind of seeing the writing on the wall. He was saying that the scans can only detect something cancerous that is larger than half a grain of rice, which meant that there could have been other mini-tumors, a term I just invented, that the scans couldn't detect, but that were spread by the blood to other areas. So, we knew this was bad and we thought at the time it meant that there were not treatment options, that the cancer was inoperable, that it couldn't be cured. But we didn't know that with certainty since we hadn't heard from the doctor.
My dad and mom went to a doctor's appointment to find out more about what it meant to have cancer in the liver - it hadn't been much time since we learned about the liver tumors. In the mean time, before that, my sister and brother-in-law and I had come home. It is so heart wrenching to drive home and hug your parent after getting news like that. I have had my fill of that type of sadness for a lifetime. Really, I've paid my dues in that area. While my parents were gone from the house at the oncologist's office, I remember feeling like I. Can't. Do. This. I don't know what I can't do this means, other than whatever is happening right now, I can't do it. I can't hear this news. I can't see my parents drive into the driveway. I can't see them get out of the car. I can't hear them talk to me and tell my sister and brother-in-law and me what esophogreal cancer moving to the liver means. I sure as hell can't hear that this is the end of the line, that the treatments didn't work, that we're into the no man's land of cancer taking over. So, I made a deal with God that if my dad would have more than six months to live, I would be able to handle the idea that he was going to die. And so I sat in my usual chair at the dining room table facing out towards the pond in our yard and heard the news from my dad and mom that Dad would have a surgery to remove the tumors in his liver, which felt at the time like it was a lot better than doing no treatment. And, I was glad that he did have more than those six months beyond when the liver metastases showed up. The esophajectomy we were anticipating didn't happen because the hospital, U.W. Medical Center, didn't feel like my dad was a good candidate at that time. and they were right. And I did my bargaining. We had a bit less than a year from that point, I think, but I might be forgetting the sequence.
My aunt A. and I were chatting as we drove to Costco to buy plateware and other stuff for food after dad's memorial service, and she said that the aspect of not knowing what comes next wtih cancer is a certain kind of torture. With my dad's cancer, it was like, here's the prognosis, here's a horrible treatment, here's a little bit of hope, nope we're taking that hope back, here's some bad news, here's the worst news yet, here's a little bit more hope, we're not sure what's going to happen, nope, don't be too hopeful because here's some news that will make you feel like you just got tackled by someone in the NFL. And then you get up from being tackled, and you take a hit from the opposite direction. And then you run for a ways and some asshole coach from the other team standing out of bounds trips you. And in the mean time you're expected to get up, brush your teeth, go to work and be a responsible adult, spend time with friends, be healthy, pay your bills, get your oil changed, be in a relationship, wash, rinse, repeat. And, simultaneously, you're supposed to strike a balance between whatever you're doing right now and spending time with your dad who has cancer.
That is a lot.
Depression. Being depressed - mmm, no thanks. I've felt the blues at different points in my life, mostly realizing after the fact that I'm feeling blue, and I was really concerned that this whole cancer thing was going to send me off some proverbial cliff. I felt a bit depressed in December but I didn't really know why until after I was feeling better in January - it wasn't that bad, I guess, and feeling icky about my dad's situation was coupled with feeling icky because I broke up with somebody I was dating for a few months. And, it was dark and rainy and I was working full time and trekking home to visit my parents as often as I could. The holidays and leading up to the holidays were really hard. I spent the past two Christmases wondering if they would be the last ones we would spend with Dad. I thought my mom was going to explode on Thanksgiving because I think she felt a similar pressure - like, this has to be perfect, because who knows how many more of these he's got left and if we don't have a green bean casserole heaven only knows what will happen. My mom is amazing, by the way. I'm not depressed right now, which I'm very grateful for, because everything that has happened could easily be depressing.
Acceptance. Acceptance is a tough. I didn't really think I'd be able to accept that my dad had cancer and that ultimately it would be fatal. My sister said "Dad dying is not an option" back when he was first diagnosed, and we were hoping for a cure, and that's exactly how I felt, too. I don't know when you're supposed to realize that even though you haven't seen this crucially important person in your life for a few weeks that it means that you don't see them anymore again. I'm giving myself time to let that idea settle in.